Cure Alzheimer's Fund

(Research)

The Cure Alzheimer's Fund is a non-profit organization dedicated to funding research with the highest probability of preventing, slowing or reversing Alzheimer's disease through venture-based philanthropy.

I’ve worked with the CAF since 2008 finding their research model both effective and efficient. All of their overhead is underwritten by their founders so that 100% of all donations go directly to fund research projects. Since it’s founding, the CAF has funded more than $74,000,000 to 337 research project.

Their funded initiatives have been responsible for several key breakthroughs — including a potential treatment selected by the National Institutes of Health (NIH) for its elite “Blueprint” drug discovery program, and the ground-breaking “Alzheimer’s in a Dish” study, which promises to greatly accelerate drug testing and was reported by the New York Times as a “giant step forward”. Charity Navigator scored the CAF with 100 percent regarding its overall financial health.

Charity Navigator Rating: 4 out of 4 Stars
100% of all contributions are applied directly to Alzheimer's Disease research.

Alzheimer's Prevention Registry

(Clinical Trails)

The Alzheimer's Prevention Registry is part of Banner Alzheimer's Institute (BAI), a nonprofit organization dedicated to the goal of ending Alzheimer's disease without losing another generation.

The Alzheimer's Prevention Registry strives to overcome that hurdle by engaging people 18 and older of all races and ethnicities who are committed to ending Alzheimer's, whether or not they have a family history of the disease. From simple questionnaires and surveys, to brain imaging studies and even pharmaceutical trials to evaluate investigational medications and therapies, the Registry offers members many ways in which to participate. In no way does joining the Registry obligate you to take part in a study or clinical trial. I have made the personal commitment and joined the registry.

National Down Syndrome Society

(Education, Research, Support)

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.

Alzheimer's disease and Down syndrome share a genetic connection, leading to the increased risk of dementia at an earlier age. Understandably, many families and caregivers are especially worried about this possibility. Getting accurate information and education about the risk of Alzheimer's disease is an important way of empowering oneself to prepare for the future. My step-son, Cory, has Down Syndrome.

Alzheimer's Association

(Education, Research, Support)

The Alzheimer's Association is the world's leading voluntary health organization in Alzheimer’s care, support and research, and the largest nonprofit funder of Alzheimer’s research. The Association’s vision is a world without Alzheimer’s®.  Visit the Alzheimer's Association to learn more.

Charity Navigator Rating: 4 out of 5 Stars

Caregiver Action Network

(Caregiver Support)

The Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease.

CAN (formerly the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.

Alzheimer's Resources

The following websites have information for you, your family and caregivers to learn more about Alzheimer’s disease and ongoing research:

Hope, Need and Urgency for Alzheimer’s

The spending on Alzheimer's research pales in comparison to that spent on cancer, heart disease and many other crippling diseases. Funding through the National Institutes of Health puts Alzheimer's research at $3,148 million estimated in 2023. This is a significant increase over previous years due to extensive lobbying by non-profits and taxpayers. However, it still lags behind equally horrible diseases including $7.4 billion for cancer.

• NO CURE, always Fatal
• Alzheimer’s is also the only cause of death in the top 10 that cannot be cured prevented, or slowed down.
• 1 in 3 Seniors Die from Alzheimer's or Related Disease
• KIlls more people than Breast and Prostrate Cancers
• No easy and inexpensive method of early detection
• 3rd leading cause of death in the United States
• Every 67 seconds another US person is newly diagnosed, 4 seconds worldwide
• Impacts more than 6 million people in the United States and over 30 million worldwid